Research for newborn screening : Developing a national frameworkBOTKIN, Jeffrey R.Pediatrics (Evanston). 2005, Vol 116, Num 4, pp 862-871, issn 0031-4005, 10 p.Article

Protecting the privacy of family members in survey and pedigree researchBOTKIN, Jeffrey R.JAMA, the journal of the American Medical Association. 2001, Vol 285, Num 2, pp 207-211, issn 0098-7484Article

Genetic exceptionalism in medicine: Clarifying the differences between genetic and nongenetic testsGREEN, Michael J; BOTKIN, Jeffrey R.Annals of internal medicine. 2003, Vol 138, Num 7, pp 571-575, issn 0003-4819, 5 p.Article

Clinical Report―Forgoing Medically Provided Nutrition and Hydration in ChildrenDIEKEMA, Douglas S; BOTKIN, Jeffrey R.Pediatrics (Evanston). 2009, Vol 124, Num 2, pp 813-822, issn 0031-4005, 10 p.Article

Effects of spouses on distress experienced by BRCA1 mutation carriers over timeWYLIE, Jean E; SMITH, Ken R; BOTKIN, Jeffrey R et al.American journal of medical genetics. 2003, Vol 119c, Num 1, pp 35-44, issn 0148-7299, 10 p.Conference Paper

Professional opportunities and responsibilities in the provision of genetic information to children relinquished for adoptionVENNE, Vickie L; BOTKIN, Jeffrey R; BUYS, Saundra S et al.American journal of medical genetics. 2003, Vol 119A, Num 1, pp 41-46, issn 0148-7299, 6 p.Article

Geneting Testing and the FamilySORENSON, James R; BOTKIN, Jeffrey R.American journal of medical genetics. 2003, Vol 119c, Num 1, issn 0148-7299, 87 p.Conference Proceedings

Fertility intentions following testing for a BRCA1 gene mutationSMITH, Ken R; ELLINGTON, Lee; CHAN, Anna Y et al.Cancer epidemiology, biomarkers & prevention. 2004, Vol 13, Num 5, pp 733-740, issn 1055-9965, 8 p.Article

Retention and Research Use of Residual Newborn Screening BloodspotsBOTKIN, Jeffrey R; GOLDENBERG, Aaron J; ROTHWELL, Erin et al.Pediatrics (Evanston). 2013, Vol 131, Num 1, pp 120-127, issn 0031-4005, 8 p.Article

Pediatric Biobanks: Approaching informed Consent for Continuing Research After Children Grow UpGOLDENBERG, Aaron J; CHANDROS HULL, Sara; BOTKIN, Jeffrey R et al.The Journal of pediatrics. 2009, Vol 155, Num 4, pp 578-583, issn 0022-3476, 6 p.Article

Communication about carrier testing within hemophilia A familiesSORENSON, James R; JENNINGS-GRANT, Tracey; NEWMAN, Jamie et al.American journal of medical genetics. 2003, Vol 119c, Num 1, pp 3-10, issn 0148-7299, 8 p.Conference Paper

Public Attitudes Regarding the Use of Residual Newborn Screening Specimens for ResearchBOTKIN, Jeffrey R; ROTHWELL, Erin; ANDERSON, Rebecca et al.Pediatrics (Evanston). 2012, Vol 129, Num 2, pp 231-238, issn 0031-4005, 8 p.Article

Breast cancer survivors' attitudes about communication of breast cancer risk to their childrenMIESFELDT, Susan; COHN, Wendy F; JONES, Susan M et al.American journal of medical genetics. 2003, Vol 119c, Num 1, pp 45-50, issn 0148-7299, 6 p.Conference Paper

Social and familial context of prenatal genetic testing decisions: Are there racial/ethnic differences?LEARMAN, Lee. A; KUPPERMANN, Miriam; GATES, Elena et al.American journal of medical genetics. 2003, Vol 119c, Num 1, pp 19-26, issn 0148-7299, 8 p.Conference Paper

Ethical issues in identifying and recruiting participants for familial genetic researchBESKOW, Laura M; BOTKIN, Jeffrey R; SUSSWEIN, Lisa R et al.American journal of medical genetics. 2004, Vol 130A, Num 4, pp 424-431, issn 0148-7299, 8 p.Article

Genetic testing for a BRCA1 mutation: Prophylactic surgery and screening behavior in women 2 years post testingBOTKIN, Jeffrey R; SMITH, Ken R; VENNE, Vickie et al.American journal of medical genetics. 2003, Vol 118A, Num 3, pp 201-209, issn 0148-7299, 9 p.Article

Communication of BRCA1 and BRCA2 results to at-risk relatives: A cancer risk assessment program's experienceCOSTALAS, Josephine Wagner; ITZEN, Mark; MALICK, John et al.American journal of medical genetics. 2003, Vol 119c, Num 1, pp 11-18, issn 0148-7299, 8 p.Conference Paper

Disclosure, confidentiality, and families: Experiences and attitudes of those with genetic versus nongenetic medical conditionsPLANTINGA, Laura; NATOWICZ, Marvin R; KASS, Nancy E et al.American journal of medical genetics. 2003, Vol 119c, Num 1, pp 51-59, issn 0148-7299, 9 p.Conference Paper

Concerns of Newborn Blood Screening Advisory Committee Members Regarding Storage and Use of Residual Newborn Screening Blood SpotsROTHWELL, Erin W; ANDERSON, Rebecca A; BURBANK, Matthew J et al.American journal of public health (1971). 2011, Vol 101, Num 11, pp 2111-2116, issn 0090-0036, 6 p.Article

Duty to warn at-risk relatives for genetic disease: Genetic counselors' clinical experienceDUGAN, R. Beth; WIESNER, Georgia L; JUENGST, Eric T et al.American journal of medical genetics. 2003, Vol 119c, Num 1, pp 27-34, issn 0148-7299, 8 p.Conference Paper

How families communicate about HNPCC genetic testing: Findings from a qualitative studyPETERSON, Susan K; WATTS, Beatty G; KOEHLY, Laura M et al.American journal of medical genetics. 2003, Vol 119c, Num 1, pp 78-86, issn 0148-7299, 9 p.Conference Paper

Interest in a support group among individuals tested for a BRCA1 gene mutationHAMANN, Heidi A; CROYLE, Robert T; SMITH, Ken R et al.Journal of psychosocial oncology. 2000, Vol 18, Num 4, pp 15-37, issn 0734-7332Article

Parental Permission for Pilot Newborn Screening Research: Guidelines from the NBSTRNBOTKIN, Jeffrey R; LEWIS, Michelle Huckaby; GOLDMAN, Edward et al.Pediatrics (Evanston). 2014, Vol 133, Num 2, pp 340-341, issn 0031-4005, 2 p.Article

Assessing public attitudes on the retention and use of residual newborn screening blood samples: A focus group studyROTHWELL, Erin; ANDERSON, Rebecca; GOLDENBERG, Aaron et al.Social science & medicine (1982). 2012, Vol 74, Num 8, pp 1305-1309, issn 0277-9536, 5 p.Article

Interpersonal Responses Among Sibling Dyads Tested for BRCA1/BRCA2 Gene MutationsHAMANN, Heidi A; SMITH, Timothy W; SMITH, Ken R et al.Health psychology (Hillsdale, N.J.). 2008, Vol 27, Num 1, pp 100-109, issn 0278-6133, 10 p.Article