Genomics and policymaking : from static models to complex systems?KNOPPERS, Bartha Maria.Human genetics. 2009, Vol 125, Num 4, pp 375-379, issn 0340-6717, 5 p.Article

Special Issue on the Art and Science of BiobankingKNOPPERS, Bartha Maria; HUDSON, Thomas J.Human genetics. 2011, Vol 130, Num 3, issn 0340-6717, 136 p.Serial Issue

From single biobanks to international networks: developing e-governanceKAYE, Jane.Human genetics. 2011, Vol 130, Num 3, pp 377-382, issn 0340-6717, 6 p.Article

Serious genetic disorders: Can or should they be defined?WERTZ, Dorothy C; KNOPPERS, Bartha Maria.American journal of medical genetics. 2002, Vol 108, Num 1, pp 29-35, issn 0148-7299Article

Reflexive governance in biobanking: on the value of policy led approaches and the need to recognise the limits of lawLAURIE, Graeme.Human genetics. 2011, Vol 130, Num 3, pp 347-356, issn 0340-6717, 10 p.Article

The emergence of an ethical duty to disclose genetic research results : international perspectivesKNOPPERS, Bartha Maria; JOLY, Yann; SIMARD, Jacques et al.European journal of human genetics. 2006, Vol 14, Num 11, pp 1170-1178, issn 1018-4813, 9 p.Article

Biobanking and international interoperability: samplesKIEHNTOPF, Michael; KRAWCZAK, Michael.Human genetics. 2011, Vol 130, Num 3, pp 369-376, issn 0340-6717, 8 p.Article

Biobanking and deceased personsTASSE, Anne Marie.Human genetics. 2011, Vol 130, Num 3, pp 415-423, issn 0340-6717, 9 p.Article

Intellectual property rights in publicly funded biobanks: much ado about nothing?PATHMASIRI, Saminda; DESCHENES, Mylene; JOLY, Yann et al.Nature biotechnology (Print). 2011, Vol 29, Num 4, pp 319-323, issn 1087-0156, 5 p.Article

Systèmes de santé et circulation de l'information : encadrement éthique et juridiqueHERVE, Christian; KNOPPERS, Bartha-Maria; MOLINARI, Patrick-A et al.Cinquième séminaire d'experts franco-québécois de l'Institut international de recherche en éthique biomédicale. 2007, 195 p., isbn 2-247-07119-8Conference Proceedings

Closure of population biobanks and direct-to-consumer genetic testing companiesZAWATI, Ma'n H; BORRY, Pascal; HOWARD, Heidi Carmen et al.Human genetics. 2011, Vol 130, Num 3, pp 425-432, issn 0340-6717, 8 p.Article

Children and biobanks: a review of the ethical and legal discussionHENS, Kristien; LEVESQUE, Emmanuelle; DIERICKX, Kris et al.Human genetics. 2011, Vol 130, Num 3, pp 403-413, issn 0340-6717, 11 p.Article

Biobanks and the phantom publicGOTTWEIS, Herbert; HAIDAN CHEN; STARKBAUM, Johannes et al.Human genetics. 2011, Vol 130, Num 3, pp 433-440, issn 0340-6717, 8 p.Article

Genomic databases access agreements: legal validity and possible sanctionsJOLY, Yann; ZEPS, Nik; KNOPPERS, Bartha M et al.Human genetics. 2011, Vol 130, Num 3, pp 441-449, issn 0340-6717, 9 p.Article

Retrospective access to data: the ENGAGE consent experienceTASSE, Anne Marie; BUDIN-LJØSNE, Isabelle; KNOPPERS, Bartha Maria et al.European journal of human genetics. 2010, Vol 18, Num 7, pp 741-745, issn 1018-4813, 5 p.Article

Ethique de la recherche et santé publique : où en est-on ?HERVE, Christian; KNOPPERS, Bartha-Maria; MOLINARI, Patrick-A et al.Séminaire d'experts. 2006, 172 p., isbn 2-247-06834-0Conference Proceedings

Biobanking residual tissuesRIEGMAN, Peter H. J; VAN VEEN, Evert-Ben.Human genetics. 2011, Vol 130, Num 3, pp 357-368, issn 0340-6717, 12 p.Article

Population biobanks and returning individual research results: mission impossible or new directions?WALLACE, Susan E; KENT, Alastair.Human genetics. 2011, Vol 130, Num 3, pp 393-401, issn 0340-6717, 9 p.Article

Biobanking and public health: is a human rights approach the tie that binds?MESLIN, Eric M; GARBA, Ibrahim.Human genetics. 2011, Vol 130, Num 3, pp 451-463, issn 0340-6717, 13 p.Article

Identifiability in biobanks: models, measures, and mitigation strategiesMALIN, Bradley; LOUKIDES, Grigorios; BENITEZ, Kathleen et al.Human genetics. 2011, Vol 130, Num 3, pp 383-392, issn 0340-6717, 10 p.Article

Realizing the promise of population biobanks: a new model for translationMURTAGH, Madeleine J; DEMIR, Ipek; HARRIS, Jennifer R et al.Human genetics. 2011, Vol 130, Num 3, pp 333-345, issn 0340-6717, 13 p.Article

Les enjeux sociaux de la médecine prédictive et du diagnostic prénatalAYME, Ségolène; KNOPPERS, Bartha Maria; RISBOURG, Bernard et al.Elargir les horizons : perspectives scientifiques sur l'intégration sociale. 1994, pp 81-144, isbn 2-921-14621-5Book Chapter

Les enjeux sociaux de la médecine prédictive et du diagnostic prénatalAYME, Ségolène; KNOPPERS, Bartha Maria; RISBOURG, Bernard et al.Elargir les horizons : perspectives scientifiques sur l'intégration sociale. 1994, pp 81-144, isbn 2-921-14621-5Book Chapter

Toward a roadmap in global biobanking for healthHARRIS, Jennifer R; BURTON, Paul; FORTIER, Isabel et al.European journal of human genetics. 2012, Vol 20, Num 11, pp 1105-1111, issn 1018-4813, 7 p.Article

Les droits de la personne et les enjeux de la médecine moderneLE BRIS, Sonia; MOLINARI, Patrick-A; TREMBLAY, Denise et al.Les droits de la personne et les enjeux de la médecine moderne. 1996, 119 p., isbn 2-763-77481-4Conference Proceedings